She was diagnosed with a central nervous system illness, Fibromyalgia, in 2006 and since then Jan Chambers has been looking for a cure. She is now the founder and president of the National Fibromyalgia and Chronic Pain Association and the non-profit organization’s mission focuses on advocacy, education, research and community support.
On KVNU’s Crosstalk show Monday, Chambers said she has traveled over 250,000 miles over the last three years meeting with researchers, clinicians, and government officials because there is a gap between research and what practicing physcians know about the illness.
“So the NFMCPA steps into that role,” Chambers explained. “If a national organization that represents an illness is doing its job, they understand the research and prepare the information not only for the patients but also for the physicians.
“As the president of the NFMCPA, most of those 250,000 miles was meeting with researchers and clinicians to understand what is happening with Fibromyalgia.”
Chambers, a resident of Providence, said education about Fibromyalgia saved her life and she created the <a href=”http://www.fmcpaware.org/”>national group</a> to advocate, educate, support research and people with FM as well as their loved ones.
The organization recently conducted a Walk to Cure FM fundraiser in Logan.